Rallying

Stay tuned for more information on Rallying to the Challenge 2018!


2017 AGENDA

WEDNESDAY, Sept. 27, 2017

10:20 a.m.
Welcome
Steve DeWitte, Connecticut Advocates for Parkinson’s
Israel Robledo, Parkinson’s research advocate
Dr. Soania Mathur, Parkinson’s research advocate

10:25 a.m.
“Off-label” prescribing: Definitions, risks, the law and unintended consequences
David Jones, Parkinson’s research advocate, The Cure Parkinson’s Trust

10:40 a.m.
Distinguishing between hype and hope
Dr. Rachel Dolhun, The Michael J. Fox Foundation for Parkinson’s Research

11:10 a.m.
The challenges of repurposing old drugs: A clinician’s view
Prof. Tom Foltynie, University College London

11:40 a.m.
Patient access to novel treatments
Dr. Michele Tagliati, Cedars-Sinai
Dr. Joy Duffen, The Cure Parkinson’s Trust
Dr. Jon Stamford, The Cure Parkinson’s Trust

12:10 p.m.
Lunch

12:30 p.m.
Your questions answered
Over lunch question-and-answer session with Dr. Patrik Brundin and colleagues

1:15 p.m.
Presentation of the Tom Isaacs Award
NOTE: This session will take place in Tomatis Auditorium during the Grand Challenges in Parkinson’s Disease symposium

1:30 p.m.
Join Grand Challenges in Parkinson’s Disease for Exendin-4 treatment in Parkinson’s disease
Prof. Tom Foltynie, University College London
NOTE: This session will take place in Tomatis Auditorium during the Grand Challenges in Parkinson’s Disease symposium

2:00 p.m.
Is there a new way to run trials? If so, how can we run them effectively?
Dr. Peter Schmidt, Parkinson’s Foundation

2:30 p.m.
2017 Rallying survey findings
How to evaluate risk vs. benefit comparing findings from healthcare professionals to people with Parkinson’s
Leah Mursaleen, The Cure Parkinson’s Trust
Dr. Soania Mathur, Parkinson’s research advocate

3:00 p.m.
Break

3:20 p.m.
Focus groups

4:20 p.m.
Feedback from focus groups

5:00 p.m.
Day closes


THURSDAY, SEPT. 28, 2017

10:00 a.m.
From a researcher’s perspective, what can people living with Parkinson’s do to help research and clinical trials
Dr. Camille Carroll, University of Plymouth

10:30 a.m.
Disease-modifying trials in the PD pipeline: Highlighting funding, staffing and recruiting needs
Sue Buff, Parkinson’s research advocate
Gary Rafaloff, Parkinson’s research advocate

11:00 a.m.
Advocacy, engagement and making a difference: A discussion
Steve DeWitte, Connecticut Advocates for Parkinson’s
Israel Robledo, Parkinson’s research advocate
Dr. Soania Mathur, Parkinson’s research advocate
Leah Murasleen, The Cure Parkinson’s Trust
Helen Matthews, The Cure Parkinson’s Trust
David Jones, Parkinson’s research advocate, The Cure Parkinson’s Trust

12:00 p.m.
Lunch

12:15 p.m.
Panel discussion: All your questions answered (during lunch)
Dr. Patrik Brundin and colleagues

1:00 p.m.
Concluding comments

1:45 p.m.
Feedback presentation to Grand Challenges in Parkinson’s Disease
NOTE: This session will take place in Tomatis Auditorium during the Grand Challenges in Parkinson’s Disease symposium