The third Rallying to the Challenge meeting will be held in parallel with Grand Challenges in Parkinson’s Disease on Sept. 26-27, 2016 at Van Andel Institute in Grand Rapids, Mich.
2016 PRELIMINARY AGENDA
MONDAY, SEPT. 26, 2016
Tom Isaacs—Co-founder, Parkinson’s Movement
Why data, data, data?
An introduction to terminology
Dr. Jon Stamford—Co-founder, Parkinson’s Movement
Presentation: Health Confidence
Peter Schmidt, National Parkinson Foundation
Genes and Parkinson’s—providing the answers or framing the questions?
Dr. John Hardy, University College London
What data would improve health outcomes?
John Dean, Davis Phinney Foundation
Lunch with the Laureate
Over lunch question-and-answer session with Nobel Laureate Dr. Paul Greengard
Chaired by Israel Robledo, Parkinson’s Movement
What did we learn from Rallying to the Challenge 2015: Outcome Measures that makes the theme for Rallying to the Challenge 2016 so pertinent?
Jill Carson, Park’n’Go
2016 survey findings
David Jones, Parkinson’s advocate
Richard Windle, Parkinson’s advocate
What questions do we want answered by Big Data? What are the most useful data needed that would improve a.) research and b.) care?
Brainstorm chaired by Dr. Jon Stamford and other Parkinson’s Movement representatives
Individual case studies for focus groups
Feedback from focus groups
Steve DeWitte and Israel Robledo
TUESDAY, SEPT. 27, 2016
Summary of activities: focus group feedback and brainstorm findings
Opportunities and challenges arising from the Big Data explosion: Putting data to work for the benefit of patients
Neil Stokes, IBM
Whose data? Ethical considerations around data collection, sharing, ownership and evaluation
Dr. Jon Stamford, Parkinson’s Movement
Soapbox: matters arising
Speakers from the audience (a chance to raise issues not so far covered in the program)
Panel discussion: All your questions answered (during lunch)
Dr. Patrik Brundin and others
Feedback presentation to Grand Challenges in Parkinson’s Disease: What data should we collect and how should that data be used?
Dr. Jon Stamford, David Jones, Richard Windle and others
NOTE: This session will take place in Tomatis Auditorium during the Grand Challenges in Parkinson’s Disease symposium
Rallying to the Challenge meeting closes