Rallying

AGENDA


WEDNESDAY, AUG. 21, 2019

9:30 a.m.
Arrivals, registration and coffee

Session One — Basic Foundations
Chairs: Jon Stamford, Ph.D., and Brian Toronyi

10:00 a.m.
Jon Stamford, Ph.D. — Parkinson’s Movement
Introduction, welcome and outline of the program

10:05 a.m.
Simon Stott, Ph.D. — The Cure Parkinson’s Trust
From Mendel’s mice to mom’s mitochondria— The A to Z of genetics

10:35 a.m.
Hugh Johnson
Somatic mutation in Parkinson’s

11:05 a.m.
Break

11:15 a.m.
Paul Cannon, Ph.D. — 23andme
From genome to phenome and back

12:10 p.m.
Lunch
Ask the experts — Q&A with the scientists

Session Two — The Patient Perspective
Chairs: Gaynor Edwards

1:00 p.m.
Benjamin Stecher — Tomorrow Edition
Risk of Parkinson’s matters to scientists and progression of Parkinson’s matters to patients

1:25 p.m.
Stephen Mullin, Ph.D., MBBS, MRCP — University of Plymouth
The GBA gene and early signs of Parkinson’s

1:55 p.m.
Break

2:05 p.m.
Dan and Ginny DeWitt — PD advocates
Team Spark survey on patient attitudes to genetics and PD

2:30 p.m.
Debate: Will increased knowledge about genetics muddy the water or clear the air?

3:00 p.m.
Break and refreshments

Session Three — Data, Data, Data
Chairs: To be announced

3:30 p.m.
Martin Taylor — Parkinson’s Research Interest Group
The good news and the bad news: One man’s story

3:50 p.m.
Discussion: The elephant in the room
The heredity of PD — the children’s perspective

4:20 p.m.
Break

4:30 p.m.
Speaker TBA
How to counsel people on genetic data and its meaning

5:00 p.m.
Gaynor Edwards — Spotlight YOPD
Envelope exercise

5:10 p.m.
Meeting closes for the day

THURSDAY, AUG. 22, 2019

8:00 a.m.
Kerri Vryhof, Shel Bell and Jon Stamford
Mind and body — An informal hangout that will provide suggestions on diet, maintaining brain health and exercise

Session Four — The Path to Progress
Chair: Simon Stott, Ph.D.

9:30 a.m.
Who owns what? The legal issues around modern medical genetics

10:00 a.m.
Unwrapping the conundrum: The chance to debate some of the issues that have arisen from the previous day’s envelope exercise

10:20 a.m.
Break

10:30 a.m.
Paul Korner, M.D., M.B.A. SVP Axovant Gene Therapies
Gene therapy – what news?

11:00 a.m.
Antony Cooper, Ph.D. Garvan Institute of Medical Research
The Australian Parkinson’s Mission

11:30 a.m.
Leah Mursaleen —  The Cure Parkinson’s Trust and Parkinson’s Movement
The word from Kyoto: Genetics highlights of the recent World Parkinson Congress

11:50 p.m.
Simon Stott, Ph.D., and Jon Stamford, Ph.D.
Wrap up

12:00 p.m.
Lunch

1:00 p.m.
Tom Isaacs Award presentation
(Presentation will take place in Tomatis Auditorium)

1:15 p.m.
Presentation to Grand Challenges in Parkinson’s Disease
(Presentation will take place in Tomatis Auditorium)

1:30 p.m.
Kerri Vryhof, Shel Bell and Jon Stamford
Mind and body — An informal hangout that will provide suggestions on diet, maintaining brain health and exercise