The agenda for the 2019 Rallying to the Challenge meeting may be found below. Stay tuned for more information on our 2020 program!


WEDNESDAY, AUG. 21, 2019

9:30 a.m.
Arrivals, registration and coffee

Session One — Basic Foundations
Chairs: Jon Stamford, Ph.D., and Ken Pierce

10:00 a.m.
Jon Stamford, Ph.D. — Parkinson’s Movement
Introduction, welcome and outline of the program

10:05 a.m.
Simon Stott, Ph.D. — The Cure Parkinson’s Trust
From Mendel’s mice to mom’s mitochondria— The A to Z of genetics

10:35 a.m.
Hugh Johnston
Somatic mutation in Parkinson’s

11:05 a.m.

Session Two — The Patient Perspective
Chairs: Gaynor Edwards and Heather Kennedy

11:15 a.m.
Paul Cannon, Ph.D. — 23andme
Caroline Tanner, M.D., Ph.D. — Fox Insight
From genome to phenome and back

12:00 p.m.
Ask the experts — Q&A with the scientists

12:50 p.m.
Get moving I
Josefa Domingos, Kerri Vryhof and John Dean

1:00 p.m.
Benjamin Stecher — Tomorrow Edition
Risk of Parkinson’s matters to scientists and progression of Parkinson’s matters to patients

1:30 p.m.
Stephen Mullin, Ph.D., MBBS, MRCP — University of Plymouth
Understanding which GBA carries will develop Parkinson’s disease

12:00 p.m.
Get moving II
Josefa Domingos, Kerri Vryhof and John Dean

2:15 p.m.
Dan and Ginny DeWitt — PD advocates
Team Spark survey on patient attitudes to genetics and PD

2:35 p.m.
Debate: Will increased knowledge about genetics muddy the water or clear the air?
Moderator: Kevin McFarthing, Ph.D.

3:15 p.m.
Break and refreshments

Session Three — Data, Data, Data
Chairs: Kevin McFarthing, Ph.D., and Shaun Hindley, Team Spark

3:30 p.m.
Martin Taylor — Parkinson’s Research Interest Group
The good news and the bad news: One man’s story

3:50 p.m.
Heather Kennedy
Soania Mathur, M.D.
Rebecca Miller
The elephant in the room: The heredity of PD 

4:25 p.m.
“My Dad: His Parkinson’s through my 13-year-old-eyes”
A film by the Acheson family

4:30 p.m.

4:40 p.m.
Anna Naito — Parkinson’s Foundation
Jeanine Schultze — Parkinson’s Foundation
How to counsel people on genetic data and its meaning

5:15 p.m.
Gaynor Edwards — Spotlight YOPD
Envelope exercise

5:20 p.m.
Summary of day one and setting the foundation for day two

5:30 p.m.
Rallying to the Challenge closes for the day. Attendees are warmly welcomed to attend the poster session.

THURSDAY, AUG. 22, 2019

Session Four — The Path to Progress
Chair: Stephen Mullin, Ph.D.

9:30 a.m.
Gaynor Edwards, Matt Farrer, Eli Pollard and Larry Gifford
Young Onset Genetic Data Bank

10:00 a.m.
Heather Kennedy and Alison Sheltrown
Evaluating the ethical envelope: Discussion and date

10:35 p.m.
Get moving III
Josefa Domingos, Kerri Vryhof and John Dean

10:45 a.m.
Paul Korner, M.D., M.B.A. SVP Axovant Gene Therapies
Gene therapy – what news?

11:15 a.m.
Antony Cooper, Ph.D. Garvan Institute of Medical Research
The Australian Parkinson’s Mission

11:45 a.m.
Simon Stott, Ph.D., and Jon Stamford, Ph.D.
Wrap up

12:00 p.m.

1:30 p.m.
Tom Isaacs Award presentation
(Presentation will take place in Tomatis Auditorium)

1:40 p.m.
Presentation to Grand Challenges in Parkinson’s Disease
(Presentation will take place in Tomatis Auditorium)

2:15 p.m.
Get moving IV
Josefa Domingos, Kerri Vryhof and John Dean