AGENDA
WEDNESDAY, AUG. 21, 2019
9:30 a.m.
Arrivals, registration and coffee
Session One — Basic Foundations
Chairs: Jon Stamford, Ph.D., and Brian Toronyi
10:00 a.m.
Jon Stamford, Ph.D. — Parkinson’s Movement
Introduction, welcome and outline of the program
10:05 a.m.
Simon Stott, Ph.D. — The Cure Parkinson’s Trust
From Mendel’s mice to mom’s mitochondria— The A to Z of genetics
10:35 a.m.
Hugh Johnson
Somatic mutation in Parkinson’s
11:05 a.m.
Break
11:15 a.m.
Paul Cannon, Ph.D. — 23andme
From genome to phenome and back
12:10 p.m.
Lunch
Ask the experts — Q&A with the scientists
Session Two — The Patient Perspective
Chairs: Gaynor Edwards
1:00 p.m.
Benjamin Stecher — Tomorrow Edition
Risk of Parkinson’s matters to scientists and progression of Parkinson’s matters to patients
1:25 p.m.
Stephen Mullin, Ph.D., MBBS, MRCP — University of Plymouth
The GBA gene and early signs of Parkinson’s
1:55 p.m.
Break
2:05 p.m.
Dan and Ginny DeWitt — PD advocates
Team Spark survey on patient attitudes to genetics and PD
2:30 p.m.
Debate: Will increased knowledge about genetics muddy the water or clear the air?
3:00 p.m.
Break and refreshments
Session Three — Data, Data, Data
Chairs: To be announced
3:30 p.m.
Martin Taylor — Parkinson’s Research Interest Group
The good news and the bad news: One man’s story
3:50 p.m.
Discussion: The elephant in the room
The heredity of PD — the children’s perspective
4:20 p.m.
Break
4:30 p.m.
Speaker TBA
How to counsel people on genetic data and its meaning
5:00 p.m.
Gaynor Edwards — Spotlight YOPD
Envelope exercise
5:10 p.m.
Meeting closes for the day
THURSDAY, AUG. 22, 2019
8:00 a.m.
Kerri Vryhof, Shel Bell and Jon Stamford
Mind and body — An informal hangout that will provide suggestions on diet, maintaining brain health and exercise
Session Four — The Path to Progress
Chair: Simon Stott, Ph.D.
9:30 a.m.
Who owns what? The legal issues around modern medical genetics
10:00 a.m.
Unwrapping the conundrum: The chance to debate some of the issues that have arisen from the previous day’s envelope exercise
10:20 a.m.
Break
10:30 a.m.
Paul Korner, M.D., M.B.A. SVP — Axovant Gene Therapies
Gene therapy – what news?
11:00 a.m.
Antony Cooper, Ph.D. — Garvan Institute of Medical Research
The Australian Parkinson’s Mission
11:30 a.m.
Leah Mursaleen — The Cure Parkinson’s Trust and Parkinson’s Movement
The word from Kyoto: Genetics highlights of the recent World Parkinson Congress
11:50 p.m.
Simon Stott, Ph.D., and Jon Stamford, Ph.D.
Wrap up
12:00 p.m.
Lunch
1:00 p.m.
Tom Isaacs Award presentation
(Presentation will take place in Tomatis Auditorium)
1:15 p.m.
Presentation to Grand Challenges in Parkinson’s Disease
(Presentation will take place in Tomatis Auditorium)
1:30 p.m.
Kerri Vryhof, Shel Bell and Jon Stamford
Mind and body — An informal hangout that will provide suggestions on diet, maintaining brain health and exercise