Rallying

AGENDA


WEDNESDAY, AUG. 21, 2019

Session One — Basic Foundations

9:30 a.m.
Arrivals, registration and coffee

10:00 a.m.
Introduction, welcome and outline of the program

10:05 a.m.
From Mendel’s mice to mom’s mitochondria— Genetics 101

10:35 a.m.
Learning the lingo — the A-Z of genetics

11:05 a.m.
Break

11:15 a.m.
Feedback 1: The word from Kyoto: genetics highlights of the recent World Parkinson’s Congress

11:35 a.m.
Feedback 2: The language of fatigue in the USA and UK

12:10 p.m.
Lunch

Session Two — The Patient Perspective

1:00 p.m.
Risk of Parkinson’s matters to scientists and progression of Parkinson’s matters to patients

1:30 p.m.
The heredity of PD — the children’s perspective

1:50 p.m.
Break

2:00 p.m.
Feedback 3: Results of the 2019 survey on patient attitudes to genetics and PD

2:30 p.m.
Will increased knowledge about genetics muddy the water or clear the air?

3:00 p.m.
Break and refreshments

Session Three — Data, Data, Data

3:30 p.m.
From genome to phenome and  back

4:00 p.m.
Does a better understanding genetics leads to better drug treatments?

4:20 p.m.
Break

4:30 p.m.
The good news and the bad news — how to counsel people on genetic data and its meaning

5:00 p.m.
The good news and the bad news — one man’s story

 

THURSDAY, AUG. 22, 2019

8:00 a.m.
Mind and body

Session Four — The Path to Progress

9:30 a.m.
Who owns what? The legal issues around modern medical genetics

9:55 a.m.
Unwrapping the conundrum

10:15 a.m.
Break

10:25 a.m.
Gene therapy – what news?

10:55 a.m.
The Australian Parkinson’s Mission

11:25 a.m.
The GBA gene and early signs of Parkinson’s

12:00 p.m.
Lunch

1:00 p.m.
Tom Isaacs Award presentation

1:15 p.m.
Presentation to Grand Challenges in Parkinson’s Disease

1:30 p.m.
Mind and body